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Benim adım Buse, dokuz yaşındayım. Kardeşim Meriç’i çok seviyorum. Onunla gülmek, oyunlar oynamak en sevdiğim şey… Meriç SMA Tip 1 hastası. Başını tutamıyor, yürüyemiyor, konuşamıyor ve cihaz olmadan nefes alamıyor.

SMA, çok az kişide görülen bir hastalık. Adını duymamış olabilirsin, belki duydun ama tam olarak bilmiyorsundur. Birlikte koşup oynayamıyoruz ama ben onunla oynamanın başka yollarını buldum.
Masallar anlatıyor, resimler çiziyor, onu hayal dünyamda gezdiriyorum. Meriç bunları çok seviyor!
Bilim insanlarının Meriç’in hastalığını iyileştirmek için çalıştıklarını biliyorum. Bir gün kardeşimin daha iyi olacağını umut ediyorum.

Yaşadığımız sürece umut hep vardır. Öyle değil mi?

Ürün Adı: SMA Hastası Bir Kardeşim Var
Ürün Kodu: 9786255642134
Yazar: Ece Soyer Demir
Basım Yılı: 2025
Kapak Türü: Karton Kapak
Sayfa Sayısı: 48
Kağıt Cinsi: 2. Hamur
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